> With the 19.5 FSH level - It probably doesn't sound high to
> you guys but then your not fertility specialists (sorry not being
> rude). The point I am trying to make is that 19.5 is HIGH, as I
> said earlier the higher the less chance of finding sperm.
Are YOU a fertility specialist? I'm not, but according to my online research, scientific evidence suggests that this is false. Just a couple of sources:
Quote: "Testicular volume and FSH levels have no predictive value"
Quote: "Successful retrieval only correlates with histology,
not with FSH values or testicular volume."
Quote: Sperm retrieval using mTESE is just as common for men with elevated FSH levels than for men with lower FSH.
I notice this post is old but i was hoping i could bring it back to life....
Cathy, Claire, Cathy and Jen.... Your stories had me gripped last night, i couldn't stop reading on and hoping there was a happy ending!!!
I'm 22, 23 in May, my partner will be 24 in July.. He was diagnosed with Klinefelters Syndrome in June last year! It came like such a blow! We'd got engaged in August the year before, and moved into our house in March... This was the next step for us...
We both broke down... Children are my life... I've worked with children since i was 16, and im now a childminder... It does get hard sometimes, but having the children round me reminds me its all worth it!
We'd been TTC since our engagement, and had no look, i then downloaded an app for my iphone that tracks your period, i noticed my average cycle was 33 days.... and it went from 33 days to 20 days some months... I hadnt noticed it was that irrergular. But while going through all different tests to see if my partner would every father a child, they did a semen analysis which came back as nil. and he has low testosterone levels. They then weighed me and asked about my periods, its at this point they said i may have polycystic ovaries... It feels like someone up there doesnt want us to have children... Everytime we went to the hospital, it felt like one thing after another... the scan confirmed i had polycystic ovaries!!
We've now been referred to Birmingham Womens Hospital... Any of you there? I'm really nervous about it all, and we've been told they need to surgically remove any sperm from my partner if they can, if thats the case, we will be going for IVF with ICSI, if not the only solution is IVF with sd... Which my partner tells me he's fine with if its our only chance...
I do wish i had people to talk to it about, my mom knows but shes doesnt know how it feels, it we've been through the stage of why us, and things, but it doesnt help.
Hope your're all okay... Still need to finish reading your stories...
I'm so sorry that you are going through this nightmare time, but there are plenty of happy stories around. We had two rounds of ICSI using doner sperm but decided not to pursue it again as its so stressful and very expensive.
We went on to adopt and now have two fabulous children (aged 4 & 5 when placed, now 5 & 7).
I was one of the orignal posters. My hunsband and I were in a similar predicament as you (husband with KF and no sperm and me with PCOS) and had to use ds and now have 2 beautful children. We love them as much as any parent could but know that one day they might want to pursue their biological father whcih scares my husband but in the menatime we are enjoying them and hope to get pregnant at the end of the year again as we have FE waiting for us.
We knew we do anything it took to have children but never dreamed it would end up like this but we wouldn't have it any other way now they are the world to us.
Good luck on your treatment and hope your dreams come true, its a rouggh road but worth it in the end.
sorry to hear clair that u an hubby are going thru this horrible time it takes me bak probly a good 8 yrs now wen we was going thru all this. so know how u feel and for me it hasnt got any better!
done 2 iuis with donor sperm which was unsuccessful then an ivf round which i ended up pregnant but had the 1st scan an there was no baby just the pregnancy sac then had to have 2 more scans just to double check they was defo no baby then had to wait for it all to pass which was just awful. then we did our frozen embryo which was unsuccessful and now awaiting to do egg sharing so i can help another couple achieve there dream even if i may never achieve mine. its a very long horrible journey but u get stronger each time u get knocked down and just have to keep having hope that 1 day it`ll happen. i wish u lots of luck and hope it works out for u.
its so nice to hear that KK and madmax now have children! it does happen and can. i wish u lots of happiness and njoy xx
Thank you for the replies, it's nice to see there's some happy endings around.
We've got our first appointment on the 12th to discuss starting ivf!! I'm excited because it's a step closer to our dream, but really nervous and don't know what to expect!!
Can any of you remember what kinda thing you had on your first appointment?
I'm undecided as to how I feel about donor sperm as I don't think my partner likes the idea of telling them, as he feels they wouldn't see him the same way.
I'm unsure about all the legalities regarding donor as well.
He's got to have a biopsy I think that's what it's called, and I'm hoping we'll know when that will be when we go on the 12th.
Thanks again, hopefully have more news in a week and a bit :)
My story is similar but slightly different! DH does not have Kf syndrome but had cancer treatment in the pelvic area as a child and was told by his consultant at 16yrs that he would be very unlikely to be able to have children. This came as a great shock to him and after years of not using any contraception with his ex-partner and then her subsequently getting pregnant by her new partner, he accepted this wasn't going to happen for him.
Working in the medical profession myself, I wasn't without hope as he is now 36 and medicine has come along way over the years. I accepted his marriage proposal knowing we may never have children because I love him so much and children or not, I know I want to spend the rest of my life with him. Children would be a bonus, but he is everything to me.
We saw our GP after 6 months of ttc, I also have PCOS, but have a normal egg reserve and clear tubes. We were referred to the hospital and after 2 semen analysis was told DH had azoospermia and absolutely NO sperm count. He was upset but not surprised. The doctor then discussed pese/tese or surgical sperm removal in other words. He said a 10-15% chance of finding something in someone who had never had DH's treatment so we weren't hopeful!! But DH wanted to know he had done everything possible to have a baby of his own before we considered donor sperm so he decided to go for it. And I am so glad he made that decision BECAUSE THEY FOUND SPERM!!
We now have sperm frozen at the clinic and since then we have got married. It really was the happiest day of our lives! I have been put on short protocol Ivf with Icsi and am due for egg retrieval next week, fingers crossed but there is always hope. So if DH has low or no sperm count, please don't give up because unless you try you will never know for sure. We were amazed (as was the consultant!) and cried tears of joy that DH would one day get to be a daddy to his own child, I will never forget those words "we found some!"
All the best to you all what ever your choices and journeys through this, it's not easy or black and white, but you have to be honest about how far your willing to go and be open with each other.
It has been such a long time since I was on this post, but it is so nice to hear so many of us have been through the nightmare and had a happy ending and are still about to support others !
Our Daughter is now 3 - really can't believe it and we are about to embark on trying to conceive number 2!
It's so amazing to speak to people who have had a similar journey into parenthood and i really cannot explain how much this thread and the ladies on it helped me cope with one of the hardest times in my life
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